I haven’t written much lately on some things going on related to previous posts, for two reasons; one I don’t know still exactly what is happening exactly and two; I think I wrote maybe too much about them previously. But to give an update.
Just to let you know that I have had contact with my daughter and spoken two or three times in the past couple of months. As she has requested we will talk about current issues and things in general but not of the past. While I am willing to do this, I have found still the calls seem so strained and not natural at all. I find that I’m worrying that I’ll say something wrong or that perhaps she doesn’t want to hear. However, I am hoping that with time, prayer and love, it will get better.
The second thing is that while I had the surgery (Turboplasty and Septoplasty) back in November because I was not able to breathe lying down and therefore had to sleep in my lazy boy for many months waiting for the operation, and it was successful, another issue arose (very shortly after) and I find myself back in the lazy boy for much of the night.
It’s not really a topic that is pleasant to describe but basically it relates to my throat and swallowing so that when I sleep for awhile, (lying down) it is short-lived and I end up going back out to my chair. I am therefore not getting good sleep ‘again’. The problem is that my ENT thought it was something my GI would be able to help with, and vice-verse, and so today after seeing the ENT specialist I am back to square one. My next step is going back to my family doctor to see who and what might help.
I’m feeling like both the specialists are not thinking it to be especially important. In fact one of them said, “your symptoms are all ‘non-specific’.. lots of people have this, this and this.” Then the other one said, ” I don’t know what to suggest, you’ve got me stumped, but it’s not something I can help you with.”
This is all too reminiscent of prior to me being diagnosed with MS, and I would describe what to me were significant and unusual symptoms for me, and my doctor would give me some routine blood work etc. to get done. Then when the results came in and didn’t show anything, he just shrugged his shoulders, scratched his head (so to speak) and said he didn’t really know of anything else he could check, except of course he would give me some anti-depressants, indicating he thought it was all in my head. After 2-3 years of this off an on, I ended up in Emergency one night with what was an extreme headache I saw an Internist. After approximately 10 minutes of him asking how my health was in general, and then examining me, the said that I should see a Neurologist…. the rest is history.
So I’m feeling a bit paranoid right now, and while I am not thinking this is anything life-threatening or anything like that, I am feeling so frustrated and just plain tired. I’m hoping that my family doctor will take me seriously. I’m even wondering if this has something to do with my MS and should see a Neurologist, since I haven’t seen one for about 4 years, as I’ve been stable for the most part. The last thing my doctor said was that since I was not currently having a flare-up as far as she could see, the specialist likely wouldn’t think I needed to see them.
Perhaps it’s something else??
In any case I guess I’ll call next week, and just hope to be taken seriously. For those of you who pray, could you maybe just say a little prayer in this regard. As I said, I’m just sooooo tired. Thanks Diane
p.s. today (I wasn’t) and this weekend I won’t be online too much, so may be delayed in reading and commenting etc…..
Filed under: Life, Multiple Sclerosis, Prayer | Tagged: anti-depressants, diagnosis, Doctors, multiple sclerosis, prayer, specialist, undiagnosed | 44 Comments »